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Useful links and references

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Created by Brian Lee , last modified on Apr 02, 2018

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Uncategorized (perhaps general)

HHS open data metadata feed - https://www.healthdata.gov/data.json
National Committee on Vital and Health Statistics - Recommendations to Maximize the Value of HealthData.gov
JASON Report "Artificial Intelligence for Health and Health Care" December, 2017 - calls out need for open data for training
JASON Report "A Robust Health Data Infrastructure" April, 2014 - calls out need for health APIs
Global Open Data Index
Data.gov open data app submission form - interesting how they used google docs for citizen engagement
Project Open Data Dashboard - metrics at the department level and HHS' report
CIO.gov Project Open Data
PLOS Criteria for Recommended Data Repositories
FAIR data principles - Findable, Accessible, Interoperable, Re-usable
Supplemental Guidance on the Implementation of M-13-13 “Open Data Policy – Managing Information as an Asset” - We maintain an Enterprise Data Inventory per the guidance, but it is currently only populated with data sets hosted by Data.CDC.gov or chronicdata.cdc.gov (through Socrata federation)
CDC/ATSDR Policy on Releasing and Sharing Data
Texas Open Data Playbook
Seattle Open Data Playbook
Seattle Open Data Risk Assessment
GSA Department Source Code Compliance Dashboard
DKAN Advice on "Tidy Data"
Library of Congress Recommended Formats Statement

Visualizations found using CDC data (there are tons, this is just a partial list collected from ongoing social media interactions)

http://flowingdata.com/2016/06/20/who-still-smokes/ \!TODO compare data.gov's JSON feed with healthdata.gov's JSON feed with Data.CDC.gov's json feed

Repositories and Repository Resources

National Electronic Injury Surveillance System All Injury Program, 2013 (ICPSR 36693) @ umich.edu
Nature.com Recommended Data Repositories
UPitt Health Services Library System Data Management Home
Data Seal of Approval 16 Requirements (under Dutch Data Archiving and Networked Services)

Data Engineering

The AI Hierarchy of Needs - description of data science/AI functions using the metaphor of Maslow's hierarchy of needs.

CDC collections of data

www.cdc.gov/data
ftp://ftp.cdc.gov/pub/Data/
ftp://ftp.cdc.gov/pub/Health_Statistics/NCHS/
Data.CDC.gov (includes chronicdata.cdc.gov through Socrata federation)
WONDER.cdc.gov

Examples of non-CDC sites scraping and hosting CDC data

Abortion Surveillance System 2009-2013 on DataLumos.org rehosts CSV files and MMWR pdfs (without 2014 file) from CDC Reproductive Health web site

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